Thursday, August 13, 2009

The First Post in My First Blog

This is my first post , I’m writing it while I’m in vacation , from a coffee shop , I don’t know what to say at first , I think I should introduce myself , I’m a young girl of as rheumatoid arthritis guy says : a superhero , and as I see myself a “RA Princess” , I started this blog loooong after I got RA , I think I started it because of RA .

I really feel like I can’t start by telling my story with RA , I feel like I told it a million time that I picture it as a short movie , a silly one . How wired! The thing that changed my whole life, the thing that changed as a person seems like nothing, I think I feel this way because people think that there is no serious disease other than cancer, people keep on telling me “You’re too young to have ARTHRITIS” ,” Everybody has a little bit of arthritis” , “I know exactly how you feel... (Insert a story here)”, “I think maybe you are so focused on what is hurting right now; you are just feeling it so much more”, "Is it really *that* bad?”, “it’s all in your head” ….. And the list goes on.

First of all , it’s not “ARTHRITIS” , and I’m sure that not everybody have a little bit of it , because it’s an “All or none” thing , moreover , nobody knows how “I” feel unless they have it , and even if they do have it differs from person to person , finally it’s not in my head and it’s really really hurt SO bad .

People keep on thinking about RA as nothing , I really hate it , because it’s a life changing disease and as long as it strike you you’ll have to change your whole life , it made me change my whole life plan .

I know that all RA people knows what I’m talking about , and there is no use of saying all those stuff , so I try not to give a big deal for what people say because all RA bloggers are here and will be here for me , I wish so (A).

For a first post I whined a lot and after I read it again I find it very confusing , but I’ll keep it as it is , it’s my first post and it’s from the heart , so, stay tuned for my next post , I hope it will be a batter one :$ .


  1. Welcome to the wide world of blogging! It is amazing how many people you will find dealing with RA. You are not alone! No one should take this journey alone.

  2. Hello Princess,
    Most people don't understand our disease because we don't look sick. You're right, after I was diagnosed, I had to alter part of my lifestyle to continue to enjoy life.

    Living It, Loving It is right. There are a lot of us out here and I think I can speak for most all of us, if you ever need someone to lean on, were all here for each other.

  3. I get the "your too young" and "you don't look like you're sick" comments a lot. That's probably why I don't always tell people I have it. I look forward to getting to know you more.

  4. Welcome to the world of blogging! You will love it!

    I'm Helly... diagnosed with juvenile RA when I was 3 and I'm now 34

    When I was laid up in hospital or bed, I found writing a great escape... I could be anyone I wanted when I wrote... a princess.... an elf..... even prime minister!

    As I've got older I've found that writing gets my frustrations out, I can see my thoughts on paper so to speak and can make more sense of them...

    Loook forward to reading more of your blogs!

    Helly x

  5. welcome to the blogger world! :)