Thursday, August 13, 2009

The First Post in My First Blog

This is my first post , I’m writing it while I’m in vacation , from a coffee shop , I don’t know what to say at first , I think I should introduce myself , I’m a young girl of as rheumatoid arthritis guy says : a superhero , and as I see myself a “RA Princess” , I started this blog loooong after I got RA , I think I started it because of RA .

I really feel like I can’t start by telling my story with RA , I feel like I told it a million time that I picture it as a short movie , a silly one . How wired! The thing that changed my whole life, the thing that changed as a person seems like nothing, I think I feel this way because people think that there is no serious disease other than cancer, people keep on telling me “You’re too young to have ARTHRITIS” ,” Everybody has a little bit of arthritis” , “I know exactly how you feel... (Insert a story here)”, “I think maybe you are so focused on what is hurting right now; you are just feeling it so much more”, "Is it really *that* bad?”, “it’s all in your head” ….. And the list goes on.

First of all , it’s not “ARTHRITIS” , and I’m sure that not everybody have a little bit of it , because it’s an “All or none” thing , moreover , nobody knows how “I” feel unless they have it , and even if they do have it differs from person to person , finally it’s not in my head and it’s really really hurt SO bad .

People keep on thinking about RA as nothing , I really hate it , because it’s a life changing disease and as long as it strike you you’ll have to change your whole life , it made me change my whole life plan .

I know that all RA people knows what I’m talking about , and there is no use of saying all those stuff , so I try not to give a big deal for what people say because all RA bloggers are here and will be here for me , I wish so (A).

For a first post I whined a lot and after I read it again I find it very confusing , but I’ll keep it as it is , it’s my first post and it’s from the heart , so, stay tuned for my next post , I hope it will be a batter one :$ .

5 comments:

  1. Welcome to the wide world of blogging! It is amazing how many people you will find dealing with RA. You are not alone! No one should take this journey alone.

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  2. Hello Princess,
    Most people don't understand our disease because we don't look sick. You're right, after I was diagnosed, I had to alter part of my lifestyle to continue to enjoy life.

    Living It, Loving It is right. There are a lot of us out here and I think I can speak for most all of us, if you ever need someone to lean on, were all here for each other.

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  3. I get the "your too young" and "you don't look like you're sick" comments a lot. That's probably why I don't always tell people I have it. I look forward to getting to know you more.

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  4. Welcome to the world of blogging! You will love it!

    I'm Helly... diagnosed with juvenile RA when I was 3 and I'm now 34

    When I was laid up in hospital or bed, I found writing a great escape... I could be anyone I wanted when I wrote... a princess.... an elf..... even prime minister!

    As I've got older I've found that writing gets my frustrations out, I can see my thoughts on paper so to speak and can make more sense of them...

    Loook forward to reading more of your blogs!

    Helly x

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  5. welcome to the blogger world! :)

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